Pengetahuan Keluarga dan Kesinambungan Penanganan Anak dengan Autism Spectrum Disorder di Rumah

Zurriyatun Thoyibah; Haryani; Sri Hardiani

doi:10.58554/jkm.v10i2.236

Zurriyatun Thoyibah, Haryani, Sri Hardiani

https://doi.org/10.58554/jkm.v10i2.236

Issue
Vol. 10 No. 2 (2026): JURNAL KESEHATAN MARENDENG

Submitted
29 May 2026

Published
30 July 2026

Keywords:

Pengetahuan keluarga;, Kesinambungan penanganan autis

pdf

Abstract

Autism Spectrum Disorder (ASD) is a neurological disorder affecting cognitive, emotional, and psychomotor functions, commonly found in children. Successful management of autism relies on the role of the family, supported by their knowledge regarding home-based care. This study aimed to analyze the relationship between family knowledge and the continuity of home-based care for children with ASD. This quantitative study employed a cross-sectional design and involved 36 families of children with ASD attending the MSC Clinic at Mutiara Sukma Psychiatric Hospital, selected via purposive sampling. Data were collected using questionnaires assessing autism knowledge and the continuity of care. Chi-square test results indicated that while the majority of respondents possessed good knowledge (69.4%), the implementation of home-based care fell mostly into the "fair" category (58.3%). Bivariate analysis revealed a significant relationship between family knowledge and the continuity of home-based care for children with ASD (p-value = 0.026). It is concluded that good family knowledge correlates positively with improved continuity of care for the child with ASD at home. Therefore, integrating clinical education with ongoing educational support programs for families is recommended

References

Ardiansyah, Satya Aras, and Hastin Trustisari. 2024. “Studi Pustaka: Deskripsi Penerimaan Keluarga Terhadap Pengungkapan Anak Autisme.” SOSMANIORA: Jurnal Ilmu Sosial Dan Humaniora 3(2):220–27. doi:10.55123/sosmaniora.v3i2.3723.
Deniz, E., Francis, G., Torgerson, C., & Toseeb, U. 2024. “Parent-Mediated Play-Based Interventions to Improve Social Communication and Language Skills of Preschool Autistic Children: A Systematic Review and Meta-Analysis.” Review Journal of Autism and Developmental Disorders. doi:https://doi.org/10.1007/s40489-024-00463-0.
Estes, Annette, Jeffrey Munson, Sally J. Rogers, Jessica Greenson, Jamie Winter, and Geraldine Dawson. 2015. “Long-Term Outcomes of Early Intervention in 6-Year-Old Children With Autism Spectrum Disorder.” Journal of the American Academy of Child and Adolescent Psychiatry 54(7):580–87. doi:10.1016/j.jaac.2015.04.005.
Jurek, L., Leadbitter, K., Falissard, B., Colin, C., Touzet, S., & Geoffray, M. M. 2023. “Parental Experience of Parent-Mediated Intervention for Children with Autism Spectrum Disorder: A Systematic Review and Qualitative Evidence Synthesis. Autism.” Autism 27(3):647–666. doi:https://doi.org/10.1177/13623613221112204.
Karen Glanz, Barbara K. Rimer, K. Viswanath. 2015. Health Behavior: Theory, Research, and Practice. 5th ed. Wiley.: Jossey-Bass.
Li, S. N., Chien, W. T., Lam, S. K. K., Chen, Z. Y., & Ma, X. 2024. “Effectiveness of Parent-Focused Interventions for Improving the Mental Health of Parents and Their Children with Autism Spectrum Disorder: A Systematic Review and Meta-Analysis.” Research in Autism Spectrum Disorders 114. doi:https://doi.org/10.1016/j.rasd.2024.102389.
Lisdayani, Intan, Namia, P. ., & Utami, J. T. .. 2025. “Pengalaman Orang Tua Dalam Menerapkan Pola Asuh Pada Anak Berkebutuhan Khusus?: Studi Kualitatif Fenomenologis.” Journal of Innovative and Creativity 5(3):37589–37596. doi:10.31004/joecy.v5i3.6081.
Rohmatika, Shilfi, and Estu Nova Harsiwi. 2025. “Peran Orang Tua Dalam Meningkatkan Kemandirian Anak Dengan Autisme.” Pendas?: Jurnal Ilmiah Pendidikan Dasar 10(100–113).
Seran, D. A., Wardany, O. F., & Herlina, H. 2025. “Peran Orang Tua Dalam Membantu Mengembangkan Keterampilan Bina Diri Anak Autis.” Jurnal Basicedu, 9(1):357–365. doi:10.31004/basicedu.v9i1.9762.
Shenoy, M. D., Indla, V., & Reddy, H. 2017. “Comprehensive Management of Autism: Current Evidence.” Indian Journal of Psychological Medicine 39(6):727–731. doi:https://doi.org/10.4103/IJPSYM.IJPSYM_272_17.
Wardatun Nisa, Fikrie, Rizqi Amalia Aprianty. 2025. “Gambaran Parental Involvement Pada Orang Tua Dengan Anak Autism Spectrum Disorder.” PPAEDAGOGY: Jurnal Ilmu Pendidikan Dan Psikologi 5(3):1012–1029. doi:https://doi.org/10.51878/paedagogy.v5i3.6747.
Weitlauf, A. S., Sathe, N. A., McPheeters, M. L., & Warren, Z. 2017. “Interventions Targeting Sensory Challenges in Children With Autism Spectrum Disorder.” Agency for Healthcare Research and Quality (186). https://pubmed.ncbi.nlm.nih.gov/29064644/.
Winarianti, Jiu, C. K., Kardiatun, T., & Bhakti, W. K. 2022. “Family Management on Children with Autism: A Phenomenological Study.” Indonesian Journal of Disability Studies, 9(2):265–281. doi:https://doi.org/10.21776/ub.ijds.2022.009.02.10.
Yulianti, Reistu Tri, and Rudiyanto Rudiyanto. 2024. “Peran Orang Tua Dengan Anak Gangguan Autisme.” Aulad: Journal on Early Childhood 7(3):918–25. doi:10.31004/aulad.v7i3.798.
Zhang, Jun-Jie, and En-Na Wang. 2025. “Enhancing Autism Care through Remote Support: A Family-Centered Approach.” World Journal of Psychiatry 15(4):1–9. doi:10.5498/wjp.v15.i4.102645.

Authors

Zurriyatun Thoyibah

a:1:{s:5:"en_US";s:32:"Institut Kesehatan Yarsi Mataram";}

oyiqyarsi@gmail.com (Primary Contact)

Haryani

Institut Kesehatan Yarsi Mataram

Sri Hardiani

SEKOLAH TINGGI ILMU KESEHATAN MATARAM

Thoyibah, Z., Haryani, & Sri Hardiani. (2026). Pengetahuan Keluarga dan Kesinambungan Penanganan Anak dengan Autism Spectrum Disorder di Rumah. Jurnal Kesehatan Marendeng, 10(2), 158–169. https://doi.org/10.58554/jkm.v10i2.236